Tag Archive 'About'

Jan 08 2007

Tagged

Published by under Main

Stu has tagged me and since he’s a friend of mine I will oblige, however not being a fan of chains this branch will end with me.

Thinking of 5 things you don’t know about me is a bit if a challenge as my blog contains a lot of information already including an overly long 100 things about me list (apologies for duplicates).

However here we go 5 things you might not know about me:

  1. By the time I was 16 I was making a good income – for a school kid – with a large window cleaning round. By 17 I was also employed by my school as a handyman, and had the keys to the whole school, I spent most of my early evenings repairing desks, doors etc.  By 18 I was working in the holidays as a painter as well.  It’s not surprising therefore that although I didn’t get pocket money I was the richest kid in school!
  2. My first real hobby whilst I was in sixth form was scuba diving and I payed for all the gear, holidays and training myself using the income from my jobs.  I really enjoyed it but eventually gave up on it because it was too time consuming and diving off the coast of England lost its appeal.  I was also a competitive swimmer and long distance runner both of which helped me progress rapidly as a diver.
  3. I have lived in 17 different places, excluding visits and holidays, but including 2 long stays in hospital.  Several of these “homes” have been pretty grotty, but I was happy enough and sometimes it’s good to remember that.
  4. I love kids, especially babies – which I am very good with – but after giving birth to 4 great girls my wife is not too keen on any more.
  5. I have devoted most of my working life (20 years) to improving the day to day productivity and enjoyment of the people I deliver IT solutions too.  I almost never think of IT in terms of the technology, it’s all about the people who’s lives I am going to impact.  Several times I have delivered systems that might have resulted in people losing their jobs but in every case I found ways to keep them gainfully employed.  Despite having mild Asbergers syndrome I get very concerned over the welfare of my peers, team members and customers and although lots of people tell me this is a weakness I consider it a blessing.

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Dec 21 2005

Where have I been?

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Well I have been concentrating on work.  My doctors have recommenced that I spend no more than 6 hours and usually only 4 hours working at my desk, so I have been concentrating on work during those 4 hours.  Blog posting has therefore had to take a back seat, however its the holidays now so I have a bit of spare desk time!

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May 06 2005

100 things about me

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  1. I was born in Lincoln in England in 1963
  2. I have one brother 2 1/2 years younger than me
  3. My Grandma claimed to be a medium, she was certainly very wise, and she told very convincing stories
  4. My Mum’s Grandad was Major of Lincoln
  5. I grew up with tremendous freedom roaming the countryside, building sites, abandoned airfields and gravel pits and reading
  6. My parents were amazing, I don’t ever remember being put under pressure, or ever feeling that I needed to work to gain their love and approval
  7. I grew up in a house with a huge garden and 50 tree orchard, the source of endless play
  8. I was a slow starter at school, I was 13 before I actually started to move up the sets, and never really found my feet academically until I was doing my first degree
  9. I suffered badly from acne as a boy and still suffer a bit now at 41,  but I learned not to let that sort of thing bother me, and learned to be happy with myself
  10. I suffered very badly from Migraine and Hay-fever as a child and remember spending lots of days debilitated by one or the other
  11. When I was about 4 I woke up one morning in the spring and a wasp was crawling up my bed, I could not get out of bed and still don’t remember what happened.  I have a phobia of wasps to this day
  12. When I was about 14 I had to read Shakespeare out load,  I had an asthma attack from the nerves and could not read at all fluently, people laughed.  I still have a fear of public speaking, although 10 weeks of speakers club helped a little
  13. I always remember working, my childhood jobs were gardening, apple picking and selling, washing up, preparing fruit and veg for bulk freezing, running errands for old folks, pumping water from the well, window cleaning round, school librarian, school lab boy, school odd-job repair man.  I was never short of money!
  14. From a fairly young age I had an allowance for, and bought, my own clothes and food
  15. I love home backed bread and other simple foods
  16. I used to help my dad repair cars and we also refurbished an old army ambulance to make a camper, it was great fun and I wanted to be a mechanic
  17. I had two childhood pets a tortoise called Micky who turned out to be a girl (she laid eggs) and a cat called Scamp who had to be put down due to injuries from a car or dog (I never found out which). 
  18. I had my finger sliced open at school by a closing door,  I was accompanied to the hospital by a careers teacher who said he thought I could do better than be a mechanic, from that day I decided to be an engineer and have never tinkered with cars since
  19. On one of our holidays in the camper the big ends went in Kendall.  Dad and me tried to fix it but we only got 20 miles before it failed again.  We got home by train and Mum bought a copy of Here’s Health at the station and her life started to change.  Ours changed as well but to a lesser extent.
  20. On another holiday shortly after, Dad broke his ankle rock hopping, this was the beginning of a string of bad luck with his health that partly drove Mum and Dad slowly apart, (drinking and smoking didn’t help either)
  21. I was shy at school and still am, especially in social situations.  Years later a Vice President at work said “did I realise I probably had mild Asbergers Syndrome”.  I looked it up, realised it was true and have never felt bad about being shy since
  22. I have always been very positive
  23. I have never been religious,  for three main reasons.  First I can not accept something so profound based on so little evidence,  I can not accept the concept of a vengeful god as described in the bible and I can not accept the concept of a god that would want to be worshipped.
  24. I have always been content with myself and never felt the need for a God to make me whole
  25. My Dad spent most of his spare time working in the garage, or more truthfully tinkering.  My Mum was always busy in the house and garden.  I promised myself I would spend all of my spare time with my wife and kids
  26. I had plenty of friends at school, but few that I really wanted to spend time with outside of school
  27. I got 8 O Levels (4 A and 4 B) and took 9. 
  28. I decided that I was never going to get a good mark in German so I decided to sacrifice it, and that it would be better to get ungraded because that did not appear on the certificate
  29. At A Level we were taught the wrong Maths syllabus so I got an E, I didn’t have the patience for Tech Drawing so I got a D and I got an A in Engineering and a B in Physics. I got an apology from the school for teaching me the wrong maths, but lost my place at Loughborough.  So I went to Trent Polytechnic
  30. I never regretted for a moment going to Trent, it was a great course and I met my wife
  31. My wife’s name is Debbie, we were on the same course at Trent – Mechanical Engineering – I really got to know her when she got glandular fever, she had to go into hospital for a week or so and I popped in to see her,  I decided on the way home that we would be married.  I had to win her away from her boy friend so it took a few months before we started to go out, we were married shortly after graduating
  32. My Dad had a bad accident on his motor bike, the front of his leg was ripped off by a car that hit him.  I am pretty sure it was not his fault – although we don’t talk about it.  He was on hospital for a long time, had grafts etc.  The leg never properly healed.  Dad was never very keen on exercise after this.
  33. I started to mentor people seriously during my time at Trent and have continued ever since
  34. My first real job was working for Debbie’s Dad on work experience one summer
  35. Then I worked for a GEC company called English Electric Valves, who decided to sponsor me.  Debbie was already sponsored by British Aerospace
  36. Debbie and I lived together during the 3rd and 4th years at Trent,  it was a great time.  We were both sponsored so we had plenty of money
  37. My Mum, after a life at home, decided she would lease a market stall and sell whole foods.  It changed her life, but my Dad didn’t change and they grew apart and separated shortly after I graduated
  38. I graduated second in my year with a First,  Debbie also got a first and came 4th.  We were both pretty pleased
  39. I got offered all of the jobs I applied for, but decided to be near Debbie so took a job at the same British Aerospace site – Brough near Hull.
  40. After a very boring year working in Airframe Systems,  I applied for an internal PHD in IT, this fell through but the IT department offered me a job and I never looked back
  41. We had two kittens Salt and Pepper, both black and white and brother and sister
  42. I was sponsored to do a part-time MBA in Engineering Business Management at Warwick University.  I did pretty well.
  43. Debbie and I had our first child – Stephie
  44. We also took on two more kittens, one I found at work after her mother had been poisoned.  She was a wild cat we called lucky.  The other was a friend she made at the Cat Protection League – Joshy.
  45. Three of our cats died in car accidents, lucky is still with us, and still pretty wild unless she wants feeding
  46. I worked mainly in IT systems to support manufacturing engineering doing development and systems integration
  47. I learned to programme in Modula 2, Fortran, Pascal, Visual Basic, DCL, Perl, Python, VB Script
  48. I was a very early adopter of Windows NT 3.1
  49. I moved to do IT systems in support of engineering design
  50. I moved to do IT infrastructure architecture
  51. We had our second daughter – Jenny
  52. I decided there was no future in Brough so we moved directly across country to Warton
  53. The happiest I have ever been was in a small flat in Lytham St Annes, we put most of our stuff in store and lived a simple uncluttered life by the sea.
  54. I have lived in 14 different homes so far
  55. I have only ever had one job that existed before I took it, my first.  I have had 10 jobs since and every one I have either invented or has been invented for me
  56. I moved to do IT solution design for major programmes
  57. I have Adult Onset Stills disease, It took 4 more years to get it diagnosed. 
  58. I have Twins Tessa and Anna
  59. That’s 4 girls if you don’t count the cat
  60. Debbie, decided to re-join a church, just around the corner, after years away.  It has made a great difference to her life, and continues to be very rewarding from both a spiritual and community perspective
  61. I once wasted a lot of money buying a posh car, and then deciding a year later to buy a practical one.  The practical car kept cutting out on me and failing to start again for an hour or so, after a year they gave me a new one.  I don’t bother about cars these days
  62. My life has been changed by Stills Disease,  it means I have to work from home and only on specific types of work but it has changed my life for the better in many ways
  63. I live with daily pain
  64. I like gadgets, especially IT gadgets
  65. I like to make my own rules, that comply with the principles that underly the applicable rule book.  I don’t feel compelled to follow “stupid rules”
  66. I rarely give in,  I have spent too much time debugging thorny problems, that always have a solution in the end
  67. I know that most problems are probably my problems, I have spent too much time debugging my own code!
  68. I don’t like it when things don’t work properly
  69. I dislike conflict and competition that is not friendly
  70. I have strongly held opinions
  71. I like to work in small teams
  72. I like to mentor/develop people
  73. I read a lot, all sorts of books, even more variety since I decided to join a reading group at the Library
  74. I like to go to the cinema and theatre
  75. I love to walk and do so most days
  76. I love to swim and do so several times a week
  77. I love to cycle and do so once or twice a week, but wish I could do it more often
  78. After 12 years Debbie and me finally found a reliable baby sitter and now manage to go out once a week
  79. I like to build things
  80. I am a perfectionist at work and a “good enough” bodger at home
  81. My favorite book is The Seventh Son of a Seventh Son
  82. I am pretty emotional, for example I often cry – a little –  when watching a good film
  83. I love open spaces, particularly the beach
  84. I am very lucky to live by the sea
  85. I like to eat out,  I have my breakfast at a beach side Cafe most days, and the kids come too weekends and holidays
  86. I do all of the washing at home
  87. I like things to be neat and tidy.  I find it difficult to relax in a mess
  88. I do not like large groups
  89. I don’t drink or smoke.  I never liked the taste and did not feel peer pressure very strongly
  90. I am very picky with my food,  I like what I like, and thats simple fare.  That said I enjoy my food very much
  91. I don’t like hot drinks
  92. I don’t have an extravagant lifestyle
  93. I love a sunny day
  94. I have sun sensitive skin as a result of a reaction of the medication Roacutane, so I have to wear sun screen most days
  95. My favorite place is Filey in North Yorkshire, a sleepy fishing village
  96. Although I am not a Christian I admire the teachings of Christ
  97. I meditate most days
  98. I have been very poor and am not afraid of it
  99. I value my time
  100. I am happy with my life

 

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Mar 17 2005

Housework

Published by under Main

HouseworkSince I started working from home I have increased the amount of house work that I do, my share is:

  • Washing the clothes and putting them away
  • At least one set of washing up
  • Tidying the kids rooms
  • Bed time stories

I don’t mind doing it to much,  but I have recently found that I actually quite enjoy it because I listen to technical conferences or pod-casts on my Treo to keep me occupied (except when reading the bedtime stories :-) ).  Today I was listening to the 2nd Tablet PC Podcast that JK has just started, more details on his blog.  and I found that I was actually looking around for more cleaning to do so that I could listen to the end.  Debbie (wife) was pretty pleased when she got home!

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Mar 02 2005

Why I love working in the end-user and work-group computing field!

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I have worked in this area for most of my working life and it continues to amaze me that it is still an area of IT that has the – untapped – potential to transform peoples lives.  Most of the customers I work with are struggling to deal with all the information they have to cope with in their work and home life (which are becoming more integrated).  They live high-bandwidth lifestyles!  Its with great interest therefore that I read the following results from the Information Work Productivity Council (IWPC) which is an independent group of companies and academics that have joined together to study the issue of information work productivity. The goal of the Council is to build a model that measures productivity in today’s information-centric business environment. 

They recently published the results of a survey into how the average user spends their time at work.  According to the study, the average user:

  • Spends 3 hours and 14 minutes a day using technologies to process work-related information—just over 40% of an 8-hour work day
  • Devotes 1.58 hours/day to e-mail (49% of the information processing time, and 20% of an 8 hour day
  • Spends 47 minutes, or 24% of IP time on telephone and voice mail
  • Receives 44 e-mails daily (a few people received as many as 500 a day)
  • Sends 17 e-mails daily and has more than 3 e-mail accounts
  • Receives 18 calls, places 15 calls, and gets 7.6 voice mail messages
  • Participates in 2.75 conference calls a week (if any)

There are huge opportunities for companies to help workers be more productive personally, in teams, and in the context of the organisation in which they work, and I look forward to continuing to help them!  This blog touches on a few of the areas I am interested in including the processes and technologies associated with:

  • Personal Knowledge Management
  • Personal Effectiveness
  • Team Effectiveness
  • Collaboration
  • Team Working
  • Workspace Design
  • Home Working
  • Mobility
  • Work Life Balance

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Mar 01 2005

What is Product Management?

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I just came across an interesting article that discusses the Product Management role.  As you can see from this post it’s quite topical, so I have commented on some extracts below.

What is Product Management?

Most people accept that “product management” is a term used to describe the sum of diverse activities performed in the interest of delivering a particular product to market. Such a broad definition, used by many companies today, is the root of much grief because it dilutes the professional focus necessary to achieve successful results and allows virtually any product-related task to be assigned to the product manager.

I agree that this definition is too broad,  I believe we address it in my company by assigning project managers to do the delivery management and focusing on ensuring that the lifecycle management activities can be achieved effectively, rather than trying to do them all ourselves! 

The overall perceived obstacle that the typical product manager encounters is the pervasive lack of professional focus. One can be adequate at many things, but it is difficult to excel at many. Many product managers therefore view themselves as trapped in a never-ending juggling routine. Having too many tasks to juggle eventually leads to tasks being dropped; the outcome is poor overall performance by the product manager, which is detrimental for the company.

I think the next section makes a useful point.  Product Management in my company is focussed on the Planning element of the management role, rather than the marketing, but its important that the products are well positioned and have clear roadmaps so that Marketing know what to market.

The two main disciplines residing in the product management domain are product planning and product marketing, which are very different from each other. But due to the collaboration between these two disciplines, some companies erroneously perceive them as one discipline—which they call product management.   If done carefully, it is possible to functionally divide the product management domain into product planning and product marketing, yet retain the required synergy between the two.

This next section talks about one of the key roles of Product Management, that of defining the requirements of the market and also the potential demand.  However it misses, in our business, the fact that our products are in fact services that have a life beyond the initial sale.

Product planning is the ongoing process of identifying and articulating market requirements that define a product’s feature set. Product marketing is an outbound activity aimed at generating product awareness, differentiation and demand.

Product planning and product marketing are different and distinct professional disciplines, because they foster different roles and different quality goals.

With such a conceptualization, it is easy to address the respective tasks of product planning and product marketing as belonging to the roles of a product planner and a product marketer.

It then goes on to provide a very nice example of one of the challenges faced by the Product Manager, the fact that the buyer is rarely representative of the user.  This is particularly true when you are selling enterprise IT services.  It is doubly important because not only is the making a sale important but also long term customer satisfaction.

To clarify: an intuitive example of this is a child’s toy. The parent is the buyer and has an interest in whether the toy is safe to use, will help the child grow smarter, will keep the child occupied and is reasonably priced. Product value is therefore marketed to the buyer, the parent.

The child cares only about product functionality, such as whether the toy is fun, engaging and visually pleasing, and whether it will do what he/she wants. The toy’s functionality is designed for the user—the child—and not for the buyer.

This next section illustrates perfectly where someone like me can help,  it describes how often tactical activities divert Product Managers from the strategic elements of their roles.  As someone highly motivated and to some extent constrained to focus on longer term strategic goals this is very relevant.

The recent fast-paced growth of high-tech industries and the shifting interpretations of product management created skewed responsibility sets for product managers. The already-problematic, broad definition of product management was further complicated when tactical activities were added to a product manager’s job definition.

Tactical activities are assignments, usually self-contained and specific, that fulfill short-term business needs. Those assignments—such as delivering a presentation, writing collateral material or assisting a salesperson—are time-consuming and demand a disproportionate allocation of individual resources (mental focus, time and physical effort) in relation to their overall importance.

By monopolizing the scope of work, tactical activities detract from the product managers’ ability to fulfill the strategic responsibilities assigned to them.

So what is a Product Managers key objective, this section describes it nicely: 

The product planner determines and defines product functionality, and therefore the prime goal is to have product buyers and users who are satisfied with the product. This means (1) contentment with the product’s ability to solve business or consumer problems and satisfy needs and (2) satisfaction with the intangible aspects of product ownership, such as service, price, warrantee, status or prestige.

I also think the Product Manager is key to helping the product marketer achieve their goal:

The product marketer’s goal is to have a satisfied sales force. This goal is somewhat indirect to the marketing actions being performed, but it is an excellent predictor of how effective the product marketer’s actions are in generating awareness, differentiation and demand for the product.

Salespeople have a relatively easy job when product marketers perform their roles well. The market environment created by the product marketer leads to a favorable situation in which the market actively buys the product rather than the salespeople having to actively sell the product. Salespeople are very happy when “the product sells itself,” which really means that the sale cycle is minimal or reduced because of quality marketing by product marketers.

The next point is “music to my ears”, the need to work together as a team:

In short, product planning’s quality goal is satisfied customers, and product marketing’s quality goal is a satisfied sales force. After defining the strategic roles of the key disciplines within the product management domain, there is a need for a cooperative scheme—a team concept—to maximize the effectiveness of these strategic roles through collaboration and complement them with outbound tactical support functions.

Product management is not accomplished successfully by only one person but by a product management team, the members of which fulfill various roles and functions.

Team design is not easy though, in the team model described below, my proposed role is closest to Product Planner role, which of course may be delivered by a team not an individual.

The product management team is a task group that organizationally resides in the Product Management department and has four distinct roles: product planner, product marketer, sales engineer and marketing communications (marcom) manager.

These four roles are the basic providers of the planning, deliverables and actions that guide the inbound-oriented product definition and the outbound marketing efforts:

And that Product Planner role is nicely described here:

The primary responsibility of the product planner is to constantly research the market and identify market needs, which are later translated into market requirements that will foster new products or new features to existing products. The product planner prepares the documents that profoundly impact the product’s success. These documents include the Market Requirements Document (MRD), product use cases, product road map and the pricing model.

I extend that role in my conceptual role though because the product/service needs to continue to meet the needs of its customers, so understanding the evolving business need, the service delivery performance and the level of customer satisfaction is key as well. Also key is working with our researchers to understand what disruptive business, social, political or technological changes may be coming along that need a more radical review of the products/services.

The next sections describe the product marketer role:

The primary responsibility of the product marketer is to analyze product-oriented business opportunities, formulate plans that evaluate those business opportunities, and plan and guide the subsequent marketing efforts. For example, the product marketer prepares the product business case and following approval, writes the marketing plan, launch plan and communications plan.

Then comes the sales engineer role, this role is interesting because I believe that I can help create many of the assets that sales engineers in the field will need to do their job, and also provide advice, so maybe “making Sales Engineers happy” could be part of my role, while the product marketer is making the salesman happy:

The sales engineer is primarily responsible for outbound product-centric activities, such as presale support and product demonstrations. Relying on their technical skills, sales engineers help customers understand how the product delivers the necessary value and functionality that address the customers’ business or consumer problem. The sales engineer’s other objective is to provide critical input to product planners on customer needs and problems.

Sales engineers often operate under titles such as product evangelist, technical evangelist, technical sales support, presale engineer, outbound product manager or technical product manager; yet, regardless of title, all perform a relatively similar set of tasks.

The final role is marketing communications, which is a similar to our Services Offerings team:

The marcom manager is primarily responsible for creating interest and demand for products through the conception and copywriting of all collateral material, advertising, direct response mail, Web and other types of communications media. This person is also tasked with maintaining a consistent company image and positioning in the marketplace, according to messages and directives provided by the product marketer.
The product management team is managed by the director of product management, or vice president of product management, who provides overall product vision, product line strategy and team management. Other titles are sometimes used to designate this leadership position, such as director of products or vice-president of products, in order to indicate the encompassing nature of this role.

This person provides guidance to team members and is responsible for furnishing them with resources, tools and uniform processes to do their jobs. On the strategic level, this role is responsible for formulating the company’s product line strategy and driving its implementation, while balancing corporate goals with long-term market trends and opportunities.

This point is quite interesting given my previous point, the article suggests that often the planner and engineer roles are combined, which I just suggested above, however as our company is big there is a one to many relationship with the Product Management function focussed on one time activities, that are then repeated many times in the field:

Frequently, the product planner and sales engineer roles are combined into one position, in which the person is charged with doing product demonstrations and providing presale support because he/she is also defining the product and thus has more expertise and in-depth product knowledge than the average salesperson.

It then suggests that these roles often suit technical people with an MBA.  It just so happens that I have a degree in Mechanical Engineering and an MBA in Engineering Business Management :-) .  I also spent many years as a customer of the company that I am now working for, so I have seen both sides of the business.

Corporate job descriptions for open positions that prefer candidates with a technical undergraduate degree and an MBA with an emphasis in marketing are a clear indication that the company views the position as a combination of the two roles.

I liked the summary: 

Product management is a domain, not a role, and it changes and evolves with the organization. It is a multifaceted and multi-disciplined domain; therefore, there will always be some ambiguity involved, but it can be significantly mitigated by applying a proper product management team concept and structure, with well-defined roles and responsibilities. Doing so is crucial—whether the company is building or rebuilding the corporate product management function.

As a result of the team restructuring and the redefinition of roles, the newly attained occupational focus helps build professional expertise.

I particularly liked this section:

The product planner can now devote time and effort to excel as a market expert and problem-teller whose role is to perform customer advocacy better than everyone else in the company, while backing assertions with quantitative market/customer data.

The product marketer is now focused on becoming a process expert, perfecting corporate competency in using tools and executing techniques, processes and tasks; that promotes winning products in the marketplace.

All this decreases departmental rivalry and allows the engineers to develop their professional expertise as technology experts and problem solvers.

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Mar 01 2005

Options

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I am currently considering my career options.  After a year working part time I believe I have a very sound understanding of the opportunities and constraints associated with Adult Onset Still Disease and its affect on work. 

Very briefly the good:

  • I have a lot of time for learning and maintaining my expertise (in addition to my formal working day) and for thinking and reviewing
  • This equips me well for advisory and planning roles
  • I work an extended day from home
  • I need to do a lot of low intensity exercise, which also allows me to make phone calls and listen to technical briefings/conferences etc

and just as briefly the bad:

  • I need to work mainly from home
  • I only work between 4 and 6 hours a day
  • I am most suited to longer term work, because of the day to day variability of the conditions
  • I am better working in a supporting rather than leadership role

I have three main options that I am considering with my company:

  • Working within a Product Management team, which is primarily concerned with managing the products and services we provide to customers through their lifecycle.  This means making sure that we correctly position the products to customers and sales/marketing, that the products and services meet the customers requirements and that products and services continue to meet the customers requirements and we continue to make an acceptable margin on them until we manage their retirement.  The particular team I am interested in has a scope of end-user and workgroup computing solutions and associated infrastructure services, which is my area of expertise.
  • Working within Infrastructure Architecture, which is less focussed and is mainly an organisation established to manage the provision of architecture resources to projects in as efficient a way as possible and to ensure that those architects develop and deliver – where possible standard - solutions according to a well defined process.  Ideally these solutions are instances or combinations of the services that are being product managed by people in the Product Management teams described above.
  • Working within Consulting, which is driven more by customer intimacy and the need to deliver business value than by the need to deliver standard services.  However it is probably just as unfocused as it – like Infrastructure Architecture – is comprised of a succession of assignments, with less long term focus.

I currently favour Product Management, because it is a smaller team, leverages my expertise most, and my role would be primarily focussed on advisory and longer term planning and positioning.  However the other two alternatives have their advantages.  Infrastructure Architecture has a large pool of assignments upon which to draw and a good peer group of architects to work with.  Consulting is more flexible and more value driven.

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Oct 24 2004

How Still’s has affected my life – the answer suprised me!

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Lifestyle effects of AOSD/CFS

I visited my specialist last week and he asked me how Still’s affected me, focussing on issues like could I dress myself, cook etc.  I am fortunate that Steroids seems to keep the major inflammatory affects of Stills reasonably under control so I am not completely house bound, when I don’t feel too good I just don’t do certain things, or get one of my 4 girls or my wife to help out. 

After I had left though I got to thinking how I have modified my life to work around Still’s and I realised what a major effect it has had, it’s just that I have adjusted in such a way that it does not seem that I have given too much up overall. In fact taken as a whole, I think I am happier post Still’s, but that is probably as much to do with my positive outlook on life as anything else.  These are some of the major changes:

I cannot do all sorts of things I used to do:

  • No DIY
  • No climbing
  • No weight training
  • No hiking
  • No heavy lifting
  • No stressful projects
  • No vacuum cleaning
  • No bread making

2.      I sometimes get depressed and suffer from anxiety:

  • I almost never got depressed before Stills, maybe 2 down days a year. Now I probably have four or five of real down days a month.  This normally happens when I have had a few good days and then relapse.  I try to train myself to expect the good days not to last, but it is difficult not to get my hopes up. The good bad cycles have happened about 10 times now in the last 9 months so I am getting better at coping with it.
  • Anxiety is something new though,  I get anxious over lots of silly things and so try to avoid situations with too much uncertainty

2.      I need to avoid trauma or infection:

  • I have noticed that my symptoms flare with every infection from colds to tonsillitis.  My worst flares (where I have ended up in hospital) have all been triggered by Strep throat.
  • I have also noticed that even trivial trauma, for example, a tooth extraction, injection, or bad cut also seem to trigger a mini flare.  This tends to make me pretty cautious and I suspect that strenuous exercise, (if I had the energy to do it) would also cause a mini flare

3.      I don’t travel much:

  • I never drive more than 30-40 minutes away from home; I get these very localised very painful muscle inflammations that mean I am unable to move my arm, jaw, knee, foot etc.  It general takes about an hour for this to happen so I have time to get home.
  • Sometimes though when I get these localised flares I need to be rescued, so I am often ringing my wife to ask her to come and get me from wherever I am.  Because of this, I don’t ever go very far from home.
  • My wife or friends drive me long distances, I hardly ever sit in a car for more than 30 minutes because I get so stiff and achy.

4.      I get very tired:

  • I used to be very energetic and driven.  I would often work for 12 hours at a stretch and hated to start a job that I could not get finished or at least make real progress on in 24 hours
  • I have had to adjust in a major way here.  My expectations are set much lower.  A task that is going to takes 3-4 hours needs a lot of preparation, I rest the day before, make sure I can have breaks in between etc.

4.      I need help and supervision:

  • I often find that I am unstable, or the pain is so intense that a joint gives way when I put weight on it.  When this happens, I am housebound and navigating the house is a real trial
  • During these periods I am often restricted in daily activities like dressing and bathing but my wife is a usually around and can help as can the kids.
  • Due to the poor concentration, I need to be careful, sometimes when not thinking straight I will need someone to drive me, cook for me and check my meds.

5.      I struggle to concentrate:

  • It’s no longer possible for me to work for hours at a time.  Most of the time I do well to concentrate for an hour or two and on a bad day that can be reduced to 20 minutes.  I spread my working day out with lots of breaks.
  • I do try to do very gentle exercise like slow walking, cycling and swimming.  When I swim, the hot Sauna and Jacuzzi help a lot as they allow me to have breaks whilst I try and build up my stamina.  The exercise helps a lot with concentration.  After 1/4 an hour of exercise, I am often able to concentrate for an hour maybe even 2 on a good day.   On many days, I struggle to exercise though.

6.      I am unable to plan to do anything:

  • Within 24 hours I can go from a reasonably normal state to almost crippled, even with the daily steroids, (and Methotrexate).
  • As an example on a really good day I can walk 2 miles and swim 40 lengths, within 2 days 8 lengths is a major achievement and a 50 metre walk is a triumph
  • We tend to leave holidays until the last minute, even then, sometimes I have to stay home and let my wife and kids go alone, but often we manage it so that I am able to go as well and I always feel better for the change.

7.      I spend more money and earn less money:

  • Frustration used to be a natural part of life.  Now I avoid it like the plague, I have enough to deal with!  If something annoys me, or I want something that my company won’t provide, or I need something fixing round the house and I don’t have the energy or strength to fix it (most things) I just spend the money now.  I used to be much more of a saver.
  • I have bought more holidays from my company, (I get paid less but get more holiday), which gives me more opportunity for a thorough rest.
  • I only manage to work about 25-30 hours a week, so I will soon only get paid (via my insurance company hopefully) 75% of the hours I am unable to work.
  • I spend more on experience and less on things.  I am not sure how my experience with Still’s will pan out in the long term so whilst I am still somewhat mobile as a family we are spending a lot more on experiencing things than accumulating things.  We all feel better for it!

8.      I have become much more relaxed and positive:

  • I live with daily uncertainty, pain and fatigue.  I have had to learn that I can still enjoy life regardless of these external elements that often fight against me.
  • I have learned that most people when they understand how Still’s affects you help you to live with the variability and accommodate you.

9.      I have learnt more discipline:

  • My days used to be governed by meetings, to-do list and diary.  I hardly had to think about what to do. 
  • Now I work on longer-term research and my health depends on forcing myself to do things, like exercise, that I often don’t feel like doing and working when I feel like slumping in the chair and watching TV or sleeping.  That has taken a lot of discipline but I have had a lot of support from work and family

10.  I do a lot more housework:

  • Now that I work at home, I have included a lot of housework into my routine as it provides a good way to take a break and with 4 kids gives my wife more time to pursue some of her interests at last.
  • I really like washing up, it’s great for the hands
  • I wash and put away all of the clothes, and with 4 girls that’s a lot of washing!  Although I cheat because I can’t put things on the line so I use a tumble drier for everything!

11.  I have much more time for the kids:

  • I am always around and able to take a much more active role during the week than I was able to before.  Previously I was a very attentive weekend Dad, but now I might be a bit slow, but I am a 7-day Dad again.

12.  I take time for myself:

  • I realise that looking after myself is a high priority, so making sure I get plenty of fun, rest, good food, lots of exercise and the minimum of stress are all top of the agenda

13.  I have learned to say no:

  • I used to accumulate work at an alarming rate.  I don’t do that now, a friend of mine, in a similar situation, said recently “don’t do anything you are not paid to do”, sounds simple but prior to Stills working a 60 hours week was common, now 37 hours is impossible so I work hard when I am able to, but when my health is at risk, I don’t find it hard to say no.  This also applies at home my family have been great in understanding that there are lots of things I can do but often I need to say no on particular days, and there are just some things that they have to do with Mum.

2 responses so far

Oct 01 2004

My research interests

Published by under Main

A colleague of mine recently asked me what my IT research interests are.  It got me thinking; I am interested in lots of things, but only a few that I am prepared to put serious time and effort into.  Here they are:

 

  1. Personal Knowledge Management
  2. Team communication, collaboration and co-ordination, especially ad-hoc inter-business scenarios, but also more formal team, project and programme collaboration
  3. Mobile working
  4. Home working
  5. Workplace design and workstation ergonomics
  6. Office tools and associated office systems, especially the transition to XML enabled office tools interacting with collaboration services and client/server XML aware databases for unstructured and semi-structured data
  7. Client technologies, and platforms, especially as they relate to the above
  8. Information lifecycle management
  9. Personal productivity, especially as it relates to the above
  10. Best practices and processes associated with the above
  11. Client application development and delivery technologies and associated user interface approaches
  12. Digital rights management and evolving trust and assertion based security models
  13. Consumerization of technology and the impact of consumer provisioning experience on enterprise service provisioning
  14. Enterprise infrastructures and especially how these need to evolve due to extended enterprise and flexible enterprise pressures as well as some of the above
  15. Enterprise infrastructure programme management and programme design
  16. User satisfaction criteria as distinct from budget holder satisfaction criteria
  17. The totality of the end user experience, rather than vertical optimisation of individual processes
  18. DCO, TCO and TVO modelling and business case development, especially as it relates to the above

4 responses so far

Sep 14 2004

Wondering what personality type you are?

Published by under Main

ISTJ Serious, quiet, earn success by concentration and thoroughness. Practical, orderly, matter of fact, logical, realistic, and dependable. Take responsibility.

ISFJ Quiet, friendly, responsible and conscientious. Work devotedly to meet their obligations. Thorough, painstaking, accurate. Loyal considerate.

INFJ Succeed by perseverance, originality, and desire to do whatever is needed, wanted. Quietly forceful; concerned for others. Respected for their firm principles.

INTJ Usually have original minds and great drive for their own ideas and purposes. Sceptical, critical, independent, determined, often stubborn. (Thats me)

ISTP Cool onlookers – quiet, reserved, and analytical. Usually interested in impersonal principles, how and why mechanical things work. Flashes of original humour.

ISFP Retiring, quietly friendly, sensitive, kind, modest about their abilities. Shun disagreements. Often relaxed about getting things done.

INFP Care about learning, ideas, language, and independent projects of their own. Tend to undertake too much, then somehow get it done. Friendly but often absorbed.

INTP Quiet, reserved, impersonal. Enjoy theoretical or scientific subjects. Usually interested mainly in ideas, little liking for parties or small talk. Sharply defined interests.

ESTP matter-of-fact, do not worry or hurry, enjoy whatever comes along. May be a bit blunt or insensitive. Best with real things that can be taken apart or put together.

ESFP outgoing, easygoing, accepting, friendly; make things more fun for others by their enjoyment. Like sports, making things. Find remembering facts easier than mastering theories.

ENFP Warmly enthusiastic, high-spirited, ingenious, imaginative. Able to do almost anything that interests them. Quick with a solution and to help with a problem.

ENTP Quick ingenious, good at many things. May argue either side of a question for fun. Resourceful in solving challenging problems but may neglect routine assignment.

ESTJ Practical, realistic, matter-of-fact, with a natural head for business or mechanics. Not interested in subjects they see no use for. Like to organize and run activities.

ESFJ Warm hearted, talkative, popular, conscientious, born co-operators. Need harmony. Work best with encouragement. Little interest in abstract thinking or technical subjects.

ENFJ Responsive and responsible. Generally feel real concern for what others think or want. Sociable, popular. Sensitive to praise and criticism.

ENTJ Hearty, frank, decisive leaders. Usually good in anything that requires reasoning and intelligent talk. May sometimes be more positive than their experience in an area warrants

3 responses so far

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