Tagged: AOSD

Managing Arthritis With An Allotment Centric Life

In this post I cover an oft-requested topic.  How my allotment centred life has helped me manage Adult Onset Still’s Disease (AOSD) and Fibromyalgia.  AOSD is a very rare auto-inflamatory disease, as a result the information on the web is drawn from a small sample of patients and isn’t very...

Spontaneous Tears

I’ve been in a severe flare for the last 37 days, a traumatic experience that’s required quite a lot of resilience to get through.  Every day I’ve had to fight with myself to overcome my natural tendency to curl up in a ball and instead force myself to keep moving,...

Pulling Out Of The Dive

This month has been hard.  I’ve had 20 days filled with pain, struggling with brain fog and fatigue, but I’ve also had to force myself to keep working; propping myself up with pain killers, sleep meds and Red Bull.  It was not a good strategy, the myriad habits that I’ve...

Meditation (experiences, progress, promise and books)

I’ve been meditating in one form or another for 40 years, I first discovered it as a kid through yoga and I didn’t think of it as meditation then, just conscious breathing.  Fifteen years ago this occasional anonymous practice became more systematic and got a name, Vipassana Meditation, now a...

My Working Life, Insights and Tips

Each day this week while on Holiday with Steph in Filey I’m planning to write a post covering a different element of my working life.  I’ve carefully designed this life so as to maximise my impact and productivity with the lowest levels of stress and minimal working hours.  Whilst some...

Help concentrating

Since I started suffering from Stills Disease about 6 years ago and more specifically since I spent a couple of years on Steroids to combat it, my concentration has degraded really badly.  I can measure the degradation quantitatively and it’s pretty significant, although it does vary from day to day.  ...

Concentration & Music

When my Arthritis is flaring I really struggle to concentrate,  I have tried a wide range of things to improve it including: Meditation Exercise Work Variety Stimulating work locations Music A couple of supplements that were recommended in “Making a good brain great“ I have made some progress, but not...