Category: Chronic Illness

The importance of keeping records

One of the things that has really helped me with AOSD s keeping my own records.  Its a very difficult thing to diagnose, so the doctors need all of the help they can get. First lets consider the major symptoms: A rash.  Take photo’s, normally the rash doesn’t itch and...

Me and AOSD

Approximately 4 years ago I was working in London, and had a sore throat and was noticing some annoying muscle stiffness and pain, I boarded the train to return to Preston and on arrival found I could no longer stand.  By the next morning I was unable to get out of bed due to extreme muscle...

So what is Adult Onset Stills Disease?

The link takes you to the AOSD web site.  Its a rare disease thats a bit like Arthritis, I started with it about 4 years ago and its been getting worse since then.  Here’s a little bit of background: AOSD is an inflammatory condition that attacks internal organs, joints and...

Adult Onset Still Disease

I started this weblog, because I have AOSD.  Most people won’t know what it is because less than 1 in 100,000 people have it.  But its important because its this disease thats resulted in me working from home, using a Tablet PC and changing my life in many ways.  So...