Over the last 11 years I had quite a few helpful meetings with my occupational therapist, this post documents the first visit, when I was full of optimism: I had my first visit from an occupational therapist today. I have been referred to her to assess the type of work...
This is the fifth in my series of posts looking back on my first 10 blog posts. It seems that even 11 years ago I was starting to get concerned over the number of gadgets that had gradually crept into my life, here’s the full post: I have so many...
This is the fourth in my series of posts looking back on my first 10 blog posts. This post continues the theme of looking at Still’s disease, explaining my early insight into the importance of keeping records: One of the things that has really helped me with AOSD s keeping...
This is the third in my series of posts looking back on my first 10 blog posts. This post is actually quite fascinating (to me) as it describes how my relationship with Still’s started through the earliest flares, I’d forgotten some of the details. It describes the defining moment in...
This is the second in my series of posts looking back on my first 10 blog posts. My second post was also incredibly short, quoting the Adult Onset Still’s Disease website’s description of Still’s disease: AOSD is an inflammatory condition that attacks internal organs, joints and other parts of the...
Back in February 2004 I wrote my first blog post, probably my shortest ever, here it is quoted in full: I started this weblog, because I have Adult Onset Still’s Disease. Most people won’t know what it is because less than 1 in 100,000 people have it. But its important...
Stuffocation: Living More With Less, is the ‘catchy’ title of a new book by James Wallman that explores the simple living movement. Unlike most of the books I’ve read on simple living though the emphasis is on ‘explores’, this is not a passionate call to arms, rather it’s a fairly...
At first sight this seems like a strange question to ask, I only need to look around me and I see all the evidence that’s need to answer with a resounding “yes” — the amazing iPhone clipped to my belt, the super efficient boiler that’s at heart of my home,...
My family and I suffer from several health conditions, which means that I have to live with a lot of unpredictability in my personal life, so wherever I have control I strive for predictability, or anti-fragility. I like to sail through life without a care in the world and I’m...
The first 40 years of my life were experiential, dominated by doing, innovating, building and learning on the job; but when I became ill, the focus shifted to an intellectual life, one dominated by reading, strategizing, planning, coaching, reviewing. It’s not as much fun! The challenge is that at work...