Archive for October, 2004

Oct 27 2004

The importance of the thick client platform

Published by Steve Richards under Main

It amazes me that so many people seem happy to predict the demise of Microsoft over the next few years, whilist they seem happy to evangalise every other thick client platform, from the relativly thin Mozilla platform:

Business 2.0 :: Magazine Article :: In Front :: Microsoft’s Worst Nightmare It all adds up to a business opportunity for startups, established software companies, and Web giants alike. Though Ross and the nonprofit Mozilla Foundation don’t stand to make money, Firefox’s open platform gives it enormous potential to hatch a new class of applications that live on the desktop but do business on the Web. Amazon (AMZN) could build a search application into the browser that lets users buy books without visiting its website. Google could make Web-based Gmail accounts behave like desktop applications such as Outlook. Word processing, calendar applications — virtually anything could be programmed right into Firefox.

To the OpenOffice.org platform, to the much more comprehensive LSB platform, to the huge Linux + GNU platform. 

Well to be honest, if there was ever a company that understood the importance of platforms - upon which people can deliver applications - it’s Microsoft and there is plenty of evidence that Microsoft have not forgotten that importance.  From .NET, Office, Information Bridge, Indigo, Avalon, Longhorn, WinFS and the next version of IE.  Microsoft will not sit still and they will create a great platform - if their track record is anything to go by. 

What remains to be seen is if any of the other competing platforms can create something compelling enough to win enough market share before Microsoft release their next generation stuff.  Probably the only viable contender is not a thick client platform at all its googles web services infrastructure platform and associated apps, perhaps with some lightweight client services to complement them..

However you can bet that Microsoft - and google to - will make sure that the Windows of the future will provide a great user experience when accessing the google web services platform, as well as the Yahoo one, MSN one and Amazon one.  That’s where Microsoft ultimately will differentiate; they won’t require you to make a lifelong commitment to google or any other important application, their platform will host or provide a portal to the lot!

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Oct 24 2004

How Still’s has affected my life - the answer suprised me!

Published by Steve Richards under Main

Lifestyle effects of AOSD/CFS

I visited my specialist last week and he asked me how Still’s affected me, focussing on issues like could I dress myself, cook etc.  I am fortunate that Steroids seems to keep the major inflammatory affects of Stills reasonably under control so I am not completely house bound, when I don’t feel too good I just don’t do certain things, or get one of my 4 girls or my wife to help out. 

After I had left though I got to thinking how I have modified my life to work around Still’s and I realised what a major effect it has had, it’s just that I have adjusted in such a way that it does not seem that I have given too much up overall. In fact taken as a whole, I think I am happier post Still’s, but that is probably as much to do with my positive outlook on life as anything else.  These are some of the major changes:

I cannot do all sorts of things I used to do:

  • No DIY
  • No climbing
  • No weight training
  • No hiking
  • No heavy lifting
  • No stressful projects
  • No vacuum cleaning
  • No bread making

2.      I sometimes get depressed and suffer from anxiety:

  • I almost never got depressed before Stills, maybe 2 down days a year. Now I probably have four or five of real down days a month.  This normally happens when I have had a few good days and then relapse.  I try to train myself to expect the good days not to last, but it is difficult not to get my hopes up. The good bad cycles have happened about 10 times now in the last 9 months so I am getting better at coping with it.
  • Anxiety is something new though,  I get anxious over lots of silly things and so try to avoid situations with too much uncertainty

2.      I need to avoid trauma or infection:

  • I have noticed that my symptoms flare with every infection from colds to tonsillitis.  My worst flares (where I have ended up in hospital) have all been triggered by Strep throat.
  • I have also noticed that even trivial trauma, for example, a tooth extraction, injection, or bad cut also seem to trigger a mini flare.  This tends to make me pretty cautious and I suspect that strenuous exercise, (if I had the energy to do it) would also cause a mini flare

3.      I don’t travel much:

  • I never drive more than 30-40 minutes away from home; I get these very localised very painful muscle inflammations that mean I am unable to move my arm, jaw, knee, foot etc.  It general takes about an hour for this to happen so I have time to get home.
  • Sometimes though when I get these localised flares I need to be rescued, so I am often ringing my wife to ask her to come and get me from wherever I am.  Because of this, I don’t ever go very far from home.
  • My wife or friends drive me long distances, I hardly ever sit in a car for more than 30 minutes because I get so stiff and achy.

4.      I get very tired:

  • I used to be very energetic and driven.  I would often work for 12 hours at a stretch and hated to start a job that I could not get finished or at least make real progress on in 24 hours
  • I have had to adjust in a major way here.  My expectations are set much lower.  A task that is going to takes 3-4 hours needs a lot of preparation, I rest the day before, make sure I can have breaks in between etc.

4.      I need help and supervision:

  • I often find that I am unstable, or the pain is so intense that a joint gives way when I put weight on it.  When this happens, I am housebound and navigating the house is a real trial
  • During these periods I am often restricted in daily activities like dressing and bathing but my wife is a usually around and can help as can the kids.
  • Due to the poor concentration, I need to be careful, sometimes when not thinking straight I will need someone to drive me, cook for me and check my meds.

5.      I struggle to concentrate:

  • It’s no longer possible for me to work for hours at a time.  Most of the time I do well to concentrate for an hour or two and on a bad day that can be reduced to 20 minutes.  I spread my working day out with lots of breaks.
  • I do try to do very gentle exercise like slow walking, cycling and swimming.  When I swim, the hot Sauna and Jacuzzi help a lot as they allow me to have breaks whilst I try and build up my stamina.  The exercise helps a lot with concentration.  After 1/4 an hour of exercise, I am often able to concentrate for an hour maybe even 2 on a good day.   On many days, I struggle to exercise though.

6.      I am unable to plan to do anything:

  • Within 24 hours I can go from a reasonably normal state to almost crippled, even with the daily steroids, (and Methotrexate).
  • As an example on a really good day I can walk 2 miles and swim 40 lengths, within 2 days 8 lengths is a major achievement and a 50 metre walk is a triumph
  • We tend to leave holidays until the last minute, even then, sometimes I have to stay home and let my wife and kids go alone, but often we manage it so that I am able to go as well and I always feel better for the change.

7.      I spend more money and earn less money:

  • Frustration used to be a natural part of life.  Now I avoid it like the plague, I have enough to deal with!  If something annoys me, or I want something that my company won’t provide, or I need something fixing round the house and I don’t have the energy or strength to fix it (most things) I just spend the money now.  I used to be much more of a saver.
  • I have bought more holidays from my company, (I get paid less but get more holiday), which gives me more opportunity for a thorough rest.
  • I only manage to work about 25-30 hours a week, so I will soon only get paid (via my insurance company hopefully) 75% of the hours I am unable to work.
  • I spend more on experience and less on things.  I am not sure how my experience with Still’s will pan out in the long term so whilst I am still somewhat mobile as a family we are spending a lot more on experiencing things than accumulating things.  We all feel better for it!

8.      I have become much more relaxed and positive:

  • I live with daily uncertainty, pain and fatigue.  I have had to learn that I can still enjoy life regardless of these external elements that often fight against me.
  • I have learned that most people when they understand how Still’s affects you help you to live with the variability and accommodate you.

9.      I have learnt more discipline:

  • My days used to be governed by meetings, to-do list and diary.  I hardly had to think about what to do. 
  • Now I work on longer-term research and my health depends on forcing myself to do things, like exercise, that I often don’t feel like doing and working when I feel like slumping in the chair and watching TV or sleeping.  That has taken a lot of discipline but I have had a lot of support from work and family

10.  I do a lot more housework:

  • Now that I work at home, I have included a lot of housework into my routine as it provides a good way to take a break and with 4 kids gives my wife more time to pursue some of her interests at last.
  • I really like washing up, it’s great for the hands
  • I wash and put away all of the clothes, and with 4 girls that’s a lot of washing!  Although I cheat because I can’t put things on the line so I use a tumble drier for everything!

11.  I have much more time for the kids:

  • I am always around and able to take a much more active role during the week than I was able to before.  Previously I was a very attentive weekend Dad, but now I might be a bit slow, but I am a 7-day Dad again.

12.  I take time for myself:

  • I realise that looking after myself is a high priority, so making sure I get plenty of fun, rest, good food, lots of exercise and the minimum of stress are all top of the agenda

13.  I have learned to say no:

  • I used to accumulate work at an alarming rate.  I don’t do that now, a friend of mine, in a similar situation, said recently “don’t do anything you are not paid to do”, sounds simple but prior to Stills working a 60 hours week was common, now 37 hours is impossible so I work hard when I am able to, but when my health is at risk, I don’t find it hard to say no.  This also applies at home my family have been great in understanding that there are lots of things I can do but often I need to say no on particular days, and there are just some things that they have to do with Mum.

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Oct 18 2004

Microsoft - Inremental innovation as well as integrated innovation

Published by Steve Richards under Main

Microsoft has made much of its “integrated innovation” value proposition.  But for many enterprises its incremental release of feature packs is probably of more interest.  This is evident when you look at both XP and 2003 Server, but 2003 server is the more impressive of the two. 

So far Microsoft have released the following feature packs:

Automated Deployment Services (ADS). Available as a download, ADS for Windows Server 2003, Enterprise Edition, includes a new set of imaging tools that enable you to automate the deployment of Microsoft operating systems.

Active Directory Application Mode (ADAM). For organizations that require flexible support for directory-enabled applications, ADAM is a breakthrough in directory services technology based on the Lightweight Directory Access Protocol (LDAP).


File Replication Services (FRS) Monitoring Tools. A number of tools are available for managing FRS, the replication engine that keeps Distributed File System (DFS) shares synchronized, including both continuous monitoring tools, such as Ultrasound and Sonar, and snapshot troubleshooting tools such as FRSDiag.

Group Policy Management Console (GPMC). GPMC simplifies the management of Group Policy by making it easier to understand, deploy, manage, and troubleshoot Group Policy implementations.

Identity integration. Identity Integration Feature Pack for Microsoft Windows Server Active Directory manages identities and coordinates user details across Active Directory, ADAM, Microsoft Exchange 2000 Server, and Exchange Server 2003 implementations, enabling you to combine identity information for a given user or resource into a single, logical view.

iSCSI support. Available as a free download, the Internet Small Computer System Interface (iSCSI) software initiator package works with the Windows platform to help provide low-cost, highly efficient IP-based storage area networks (SANs).

Windows SharePoint Services. Windows SharePoint Services sites take file storage to a new level, providing communities for team collaboration and making it easy for users to work together on documents, tasks, contacts, events, and other information.

Services for UNIX 3.5. Available as a free download, Services for UNIX 3.5 provides services that enable seamless interoperability with UNIX servers, such as an NFS and NIS server, as well as tools and services to help customers migrate applications from UNIX to Windows.

Windows Rights Management Services (RMS). A milestone of trustworthy computing, RMS is an information protection technology that works with RMS-enabled applications to help safeguard digital information from unauthorized use.

Microsoft plan a number of additions over the next 2 years, whilst we wait with baited breath for Longhorn.

Second Half 2004: Windows Server 2003 Service Pack 1 and Windows Server 2003 64-bit betas
First Half 2005: Windows Server 2003 Service Pack 1, Windows Server 2003 64-bit Editions and Windows Update Services
Second Half 2005: Windows Server 2003 R2, Windows Storage Server R2, Windows Server 2003 High Performance Edition and Windows “Longhorn” Server Beta 1
2006: Windows Server 2003 Service Pack 2 and Windows “Longhorn” Server Beta 2
2007: Windows “Longhorn” Server


It looks like Microsoft is learning three difficult lessons, first it needs to keep its volume licence holders happy, second enterprises don’t like big changes and finally - maybe those Unix/Linux had something with their modular architecture after all!  For more details check out Microsoft’s site here.

 

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Oct 18 2004

I installed google desktop search, but not for long …

Published by Steve Richards under Main

A friend recently pointed out that google have just released their desktop search product in beta, everything google does seems to be in beta, a few hours before almost everyone on my blogroll also reported the fact!

Anyway like thousands of other bloggers I quickly installed it.  At first I was none too happy with it though.  It did not ask me where to store its index, what file types to index, which areas to index.  In fact it seemed way too simple to setup.  So I uninstalled it worrying that it was going to go away and index every file on my two 120G disks.  Well I should have looked a bit harder at the FAQ and when I did I realised that it can take such a simple approach to life because it only indexes Office documents and HTML files, and these don’t take up anywhere near as much space.  However I guess, but have not checked, that it did index my multiple backup areas.

So having reinstalled it what do I think.  Well to be honest I don’t like it all that much.  I have huge numbers of files, often many versions of the same file and I find the google interface clumsy to navigate around compared to the file search optimised interface of X1.  I particularly like the preview capability to X1 and its ability to do type down searches from multiple perspectives.  For example in X1 I often search like this, find me all the word documents, with “programme definition” in the file name, that I wrote in 2004.  Sometimes this is trims the list to 3 or 4 documents and I can easily find the one I want, sometimes I need to add containing “some phrase”.  Even then I sometimes use the preview to glance at say, the documents change history; to be really sure.  It’s not anywhere near as easy with google.  Sure google desktop, just like it does on the web, will find plenty of matches; but my experience so far is that far too many of them are poor matches and I have to wade through pages to get to the document I want. 

There is probably some great advanced search syntax I can use to do the same query I did in X1, but it would still lack the visual “type down” feedback and the preview. 

Having said all that the very next thing I did was install it on my wifes PC.  She has probably 2-300 files and is constantly complaining she can not find stuff, and is nervous around computers.  I showed her google desktop and she was relaxed and instantly at home.  She loved it, and so will 95% or more of google’s existing loyal userbase, the same users who will probably love gmail and never go back to Outlook.

Ultimately that’s the beauty of the google approach, simple, fast and familiar.  Behind the scenes I am sure google are cooking up some great extensibility features just as they have with google and gmail, but they are getting the basic stuff right first time and if my wifes typical – and I am sure she is – they will succeed.

By the way, if you want to read a good review, have a look at this one.

One response so far

Oct 18 2004

Microsoft stalls as Citrix continues on a roll

Published by Steve Richards under Main

Microsoft watch reported today that Microsoft are dropping the “anywhere access” functionality scheduled to ship in Windows 2003 Server R2.  Which is a real disappointment, tempered slightly by the fact that Citrix continue to innovate around their platform.

In May, Microsoft officials said to expect R2 to include bug fixes for Windows Server 2003, as well as some of the 12 to 15 Windows Server “feature packs” that the company has rolled out since Windows Server 2003 shipped in April 2003. These feature packs include Active Directory Application Mode, SharePoint Services, Windows Update Services. Officials also said at that time that R2 would include full Network Access Protection and “Anywhere Access” capabilities, the latter of which was expected to draw on Microsoft’s next-generation Terminal Server features.

But now Microsoft has decided to push the Network Access Protection security capabilities it into Windows Server “Longhorn,” the Windows Server release due in 2007.

“Delivering Network Access Protection in R2 would have forced too many changes at a low level,” said Samm DiStasio, a group product manager with Microsoft’s Windows Server division, in explaining the company’s decision to postpone the feature until Longhorn Server.

At the same time, the Redmond software vendor has decided to cut any new Terminal Server updates from R2 and push them into the 2007 timeframe, executives confirmed. There was talk earlier this year that Microsoft had opted to axe Terminal Server “Bear Paw” features from R2, but the company would not confirm this decision publicly until now.

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Oct 10 2004

Citrix Previews Future Technologies

Published by Steve Richards under Main, WorkSpace

As usual Brian Madden has all of the latest information on Citrix, this time it’s the main features in Metraframe Presentation Server 4.  Pretty interesting stuff if you ask me.

Citrix’s future technologies include:

  • Smart Access
  • ActiveSync via ICA
  • TWAIN imaging device ICA redirection (scanners, cameras, etc.)
  • Performance management technology licensed from Aurema and RTO
  • Audio enhancements in preparation for VoIP
  • EMF-based Printing
  • Windows 64-bit support
  • Application Isolation Environments
  • Virtual IP addresses
  • GoToWebinar
  • ICA Session Recording, Archiving, and Surveilling
  • Hardware Appliances

For a more detailed list of each feature check bout Brian’s web site

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Oct 10 2004

A story about thinking

Published by Steve Richards under Uncategorized

This charming story is based on the ‘Six Thinking Hats’ by Edward de Bono. The story shows the individual use of the hats and their effects as types of thinking. Perhaps this is just the beginning and readers will add further chapters to this story or write similar stories embodying other thinking tools and frameworks. It is my wish that we can gather a large number of stories that are suitable as ‘bed time stories’ which people can then download from the site and read to their children. Any volunteers to create some illustrations? Please send your contributions to me at edwdebono@msn.com.

Peter de Bono

The Magic Hats
By Lorna Santín


A long time ago, in a beautiful village with small straw houses, something happened which I’ll tell you about. About a hundred people lived in that place . There was a bread maker, a locksmith, several miners, a teacher and many more men with different jobs. Each of them lived with his family - his wife, his children … There were younger, middle aged and older children. Some of these children liked playing near a waterfall just outside the village. Of course their parents didn’t like the idea at all because they thought this sort of fun was dangerous. Near, very near that waterfall, there were some little bushes. And right beside the bushes there were some small mushrooms. And beneath these mushrooms, lived Adao. Adao was a nice small gnome, who had a twin brother named Gabo. Adao was short and stout; so was Gabo. Adao had red hair and freckles; so did Gabo. Adao used a hat; so did Gabo. And both made their own clothes. Yes, with a small sewing machine that their mother had given them as a present just when they told her of their idea of living on their own, far from their father’s home. Adao and Gabo were identical. So much so that anyone would be confused as to who was who. Well, they were identical on the outside, not on the inside. They had a very different heart. They behaved differently. They
even behaved in almost opposite ways. Adao, for instance, was always thinking about how to help other people. Gabo, in turn, lived to have fun, and was capable of doing anything that would make him laugh, even if that behaviour got others into trouble. One night, Adao had gone to bed early, and Gabo thought of a plan to have some fun. He went to their small “thread and needle workshop”, where he and his brother had that sewing machine that their mother had given them. And once there, he started making more and more hats. He made one for each person in the village. But he only used six different colours: some hats were green as plants, others white as paper; still others, red like fire; he also made some blue as the sky, others yellow as the sun and, to end with, others black as the night. Apparently these were hats like any others, but the interesting thing about them was that they were invisible to the human eye. Only the gnomes, the fairies, the wizards, the witches and other fantasy beings could see them. But that was not all: what made them more special is that, using any of these hats, something very strange happened to anyone who was wearing it … And it was this happening that made Gabo enjoy himself so much. Once he finished making all those hats and while everyone in the village was sleeping, Gabo paid a visit to each house, and placed a hat on each inhabitant’s head. Each and every one of them was wearing a hat: the parents and the children, the grannies and also the babies. But as these hats were invisible, no one noticed. The next morning, when the villagers woke up, something very strange happened. Fermín, an adventurous boy, all of a sudden didn’t want to come out of his home. When his friends came to invite him to play, he replied: “I’m not going out; it’s very dangerous, I can fall in the river …”. Fermin’s mother didn’t understand what happened to her son as he usually was too daring and he was frequently in trouble. The usual thing was for him to invite other children to go to the dangerous waterfall … The woman’s attention turned to something else because right at that moment her neighbour, Doña Beatriz, came crying bitterly because she had burnt a cake that she was cooking for her husband. And she said: “I’m good for nothing; it’ll be better if I’m left in the woods for bears to come and eat me”. “My neighbour crying?”, thought Fermin’s mother. “She who never worries about anything?” Beatriz was such a balanced person, it even looked, sometimes, as if she didn’t have feelings. She was never seen in anguish, or sad, or happy either. It looked as if she lived with a motto: “Everything is as it should be”. But today, what was happening
to her? It looked as if her feelings of sadness were pouring out and overwhelming her. That scene was also interrupted because an explosion was heard and Fermin, his mother, and Doña Beatriz ran to the place where they thought the noise had come from. Of course they found other villagers there. Many had come to that place, shocked, trying to find out what had happened. There they found Arturo. Arturo was known to all as a quiet, shy and lonely boy. He didn’t seem to take an interest in anything that was happening around him. But today there was no trace of that personality. All of a sudden he had felt a curiosity to learn about the world and had started experimenting up to the point of causing an explosion. Arturo was covered in ashes, to such an extent that some didn’t recognise him at first. One thing was certain: he was seen to have an urge to go on investigating more and more … He didn’t look worried about the mess he had created. Very near him was Rodrigo, his brother, a usually distracted and forgetful boy. Some said Rodrigo could even forget his own name. But not that day. There he was, near his brother, uttering the names of each and every one of the inhabitants of the village, and their birthdays, and then publicising the favourite dish of each one and also their favourite colour. Nobody could explain what was happening. It was simply obvious that something was happening. If they had paid a little more attention, maybe they would have discovered Gabo, behind the bushes, trying not to show he was laughing. Adao immediately knew what was happening. He could see the hats because they were not invisible to him. And he guessed at once that his brother was involved in the trouble. Adao knew very well how to help people. If they only knew they were wearing hats! Then they would know they could take them off. But Adao knew it was not easy for people to notice this, as people seldom see themselves. Adao thought he should act but didn’t want to be seen by humans, so he decided to wait until nighttime. He stayed around in order to avoid further problems. Close to six o’clock in the afternoon, some miners were heard returning home, after a long day at work in the mine. There were Fermin’s father and Doña Beatriz’s husband. They came along singing happily and chatting about how wonderful it was to work in the mine … Their wives couldn’t believe what they were hearing as they had always complained about how dangerous and unpleasant it was to work there. Late at night, when everyone was sleeping, Adao went into each of the houses in the village. Whispering in each person’s ear, he said to each: “You are wearing a hat - you must realise that”. The next morning, when they woke up, before saying “Good morning”, they were all repeating “you’re wearing a hat - you must realise that”. Even the babies - well, they couldn’t speak, but they moved their little heads and half-sung a tune. Several people joined together in the central square of the village and, instead of saluting each other, they said at the same time: “you’re wearing a hat - you must realise that”. Just then, they put their hands on their heads and, at that very instant, the hats took shape and colour. People noticed each of the hats had something written on them: on the white hats the word “Information” was written. Rodrigo and many other villagers were wearing white hats. Arturo and other people were wearing a green hat with the word “Creativity” on it. The black hats said “Problems” and, for sure, Fermin had a hat of this colour. Fermin’s mother had a blue hat with the name “Observer” on it. Her neighbour and other people were wearing a hat on which you could read “Emotion” and which was red. The miners and others had a yellow hat with the word “Optimistic” written on the front. Fermin’s mother suggested they could all swap hats among themselves, but she decided to keep the blue one, in order to observe the others. Straight away it became obvious that people changed their behaviour as if controlled by the word on each hat. After making these changes several more times, they all decided on something important which changed their lives for ever. Right there and then, they made a huge coloured hat of clay . Then, with a hammer and a chisel they wrote something on a stone, which they left at the foot of such a monumental sculpture. On the stone you could read the following: _If you want to understand your neighbour, you should wear his hat._
_And if you want to solve conflicts, you should control the hats._ Since that day the villagers lived together happily, understanding each other and with the certainty that any situation can be understood if you look at it from different points of view.

the end

Translated from the Spanish by Dr Lucase Gonzalez Santa Cruz


by Magdalena Santin

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Oct 10 2004

Six Thinking Hats

Published by Steve Richards under Main

I have just started to think through some of the processes, I take for granted.  One of these is ”researching and decision making”.  One of the first approaches I came across was the “Six Thinking Hats”; approach it stunned me that a process I am so familliar with could be so dramatically improved through applying more structure.  What particularly appealed was how the approach works within teams to avoid conflict.  Here’s a summary of the approach:

  • White Hat:
    With this thinking hat you focus on the data available. Look at the information you have, and see what you can learn from it. Look for gaps in your knowledge, and either try to fill them or take account of them. This is where you analyze past trends, and try to extrapolate from historical data.
  • Red Hat:
    ‘Wearing’ the red hat, you look at problems using intuition, gut reaction, and emotion. Also try to think how other people will react emotionally. Try to understand the responses of people who do not fully know your reasoning.
  • Black Hat:
    Using black hat thinking, look at all the bad points of the decision. Look at it cautiously and defensively. Try to see why it might not work. This is important because it highlights the weak points in a plan. It allows you to eliminate them, alter them, or prepare contingency plans to counter them.

    Black Hat thinking helps to make your plans ‘tougher’ and more resilient. It can also help you to spot fatal flaws and risks before you embark on a course of action. Black Hat thinking is one of the real benefits of this technique, as many successful people get so used to thinking positively that often they cannot see problems in advance. This leaves them under-prepared for difficulties.

  • Yellow Hat:
    The yellow hat helps you to think positively. It is the optimistic viewpoint that helps you to see all the benefits of the decision and the value in it. Yellow Hat thinking helps you to keep going when everything looks gloomy and difficult.

  • Green Hat:
    The Green Hat stands for creativity. This is where you can develop creative solutions to a problem. It is a freewheeling way of thinking, in which there is little criticism of ideas. A whole range of creativity tools can help you here.
  • Blue Hat:
    The Blue Hat stands for process control. This is the hat worn by people chairing meetings. When running into difficulties because ideas are running dry, they may direct activity into Green Hat thinking. When contingency plans are needed, they will ask for Black Hat thinking, etc.

Buy the book, I know I’m going to!

One response so far

Oct 06 2004

AOSD and work

Published by Steve Richards under Main

One of the responses to my post on the Stills Message Board was about AOSD and Work, and the difficulty some people have with communicating with their employers about the disease, and in fact with some health industry workers.  I thought this was interesting because it’s similar to my experience so I thought I would write a bit about it.

First off you need to be able to explain why Still’s affects your ability to work.  At first I just tried to describe the pain, but in my case the pain is really not that extreme and others do manage to work with that level of pain.  I am a pretty motivated guy normally so that got me thinking a bit more about why I struggle to work when I am in a flare and why even when things have stabilized I don’t have the stamina I used to have.  This is what I came up with:

  1. Although I suffer from Joint, Muscle and Tendon pain these in themselves I can put up with and generally work through provided my arms and hands are not too bad, (as I spend a lot of time typing) and I take a break every hour.
  2. Every couple of days I will get extreme pain, often very localised, for example in my Jaw, Knee, Elbow, Finger etc. Normal pain killers have no effect.  It’s very difficult to find work to do when in this sort of pain. I have found that only things that are very easy, or very absorbing (but not complex) work because they are distracting.  In my job I try to watch recordings of technical conferences during these periods.
  3. The main things that affect my ability to work are, the fatigue, difficulty concentrating and mental fog that seriously affects my mental acuity.  These things don’t stop me dead, for example I am still able to read, have a discussion on the phone, type a couple of emails, but they limit the amount of time I can spend working, the intensity and the quality of my work.  I tend to find the error rate in my typing increases 10 fold, that I struggle to find the rights words, or make difficult decisions.  These symptoms rule out most of my work activities.
  4. An associated problem is the depression, the combination of the pain, the mental affects, the lack of sleep, the fevers, the itching etc don’t make me that positive and the slightest issues seem to make me anxious and frustrated.  When I feel like this I have to avoid certain situations, such as document reviews where the conclusions impact on people firmly held beliefs, as these discussions quickly degrade into arguments. 
  5. I have noticed that hard work tends to increase the likelihood of a flare and affects the duration of a flare, so my Doctor tends to encourage me to rest
  6. I have pretty reliable evidence now that whenever I get an infection it triggers a flare, and this tends to wipe me out for about a week

However I have found that home working combined with a carefully designed work mix makes this all a lot more bearable for the following reasons:

  1. It’s much easier to take a real break when I get tired, because there are plenty of other things to do at home
  2. I am less likely to get drawn into working for too long, or to get sucked into solving problems that are not my responsibility
  3. I am able to work an extended day, lowering the intensity of my activity
  4. I don’t have to worry about my ability to drive safely
  5. I have more flexibility in what I do at particular times, for example if my arms are hurting I can sit in a comfy chair and do some reading, or go for a walk or a swim

I am trying to develop a mix of work that is as flexible as my condition is variable, my ideal work mix goes something like this:

  1. Work that does not have short term deliverables
  2. Work that does not involve me being available at specific times during the day
  3. A mix of work in the following proportions, 2 hours of research, 2 hours working on long term deliverables, 3.5 hours medium term project deliverables.
  4. Even on bad days I can normally manage the 2 hours of research, on better days I try to work on the medium term project deliverables and on the best days I also work on the long term deliverables.
  5. My current experience is that I have gradually increased my work from 3-4 hours average to 5-6 hours average.  Whenever I have got beyond 6 I have had some sort of relapse for a whole variety of reasons, which may not be work related for example an infection or a dosage change.
  6. I have also noticed (not suprisingly) that the worse I feel the more research I do and the less I work on deliverables. 
  7. On the plus side I have found that my grasp of concepts and my intuition are still very strong (probably stronger than they were before) as is my ability to review and help bring shape and structure to work.

Finally how to help people understand:

  1. I have kept extensive records, which have helped me understand much better!  In particular I found keeping records of things like fatigue and mental acuity particularly useful
  2. It’s key to think not in terms of symptoms in their own right but how these symptoms affect your ability to do things
  3. Its key to think about how you feel, not just about the things that the doctors can measure
  4. I have found it very difficult sometimes to understand why I struggle to get beyond 6 hours average work.  What seems to happen is that hours just drift by in a mental fog.  So I might sit at my computer for more than 6 hours but more than 6 hours of work does not get done.  I often find for example that I have sat for half an hour reading a report and can not remember what I have read and have to go back and start again (when this happens I count that as 1/2 an hours work not an hour).
  5. There is very little available to help Still’s patients but one of the most useful things I have found is the wealth of material to help sufferers of Fibromyalgia.  This is particularly helpful because this disease has similar pain, fatigue and mental affects to AOSD so its impact on work is similar.  Search the web and you will find loads of advice on disability, coping with fatigue etc.  You can start here:

http://www.fmnetnews.com/pages/Disability.htm

http://fmaware.org/patient/disability.htm

http://www.nfra.net/fibromyalgia_disability.htm

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Oct 06 2004

AOSD Update

Published by Steve Richards under Main

Well it’s that time again.  A quick look back at the last month and how I have coped and what I have learned about AOSD.  Here is a summary chart showing cumulative symptoms:

 

 

 

  1. At my last visit to my specialist I was on 20mg of Prednisone, I was doing pretty well but my bone density scan showed I was below normal.
  2. We agreed that I would reduce to 10mg and then taper off to zero and transition to Methotrexate.
  3. Just after this visit I came across some articles that suggested that sustained medium intensity exercise produced natural Cortisol and I began to get excited about the prospect of substituting exercise for Prednisone.  This didn’t work and I blogged about that in much more detail here
  4. As I reduced the Prednisone I introduced a NSAID Celebrex
  5. Anyway I slowly came off Prednisone, I seemed to be doing reasonably OK and I initially put the gradual increase in pain down to Prednisone withdrawal.
  6. Then all of a sudden I was hit with really bad waves of fatigue, very poor concentration, plenty of tendon and joint pain, headaches etc.  I was feeling really rough. 
  7. At first the doctor thought this was an infection, so I started monitoring my temperature but there was no sign of fever.  Even so he was reluctant to put me back on Prednisone.  After a while we agreed it was unlikely to be an infection so I went back on 10mg Prednisone. 
  8. Within about 5 days I was feeling quite a lot better.  That’s where I am now; I have just had the blood tests to check that I am OK to go onto Methotrexate, and am expecting to start tapering the Prednisone in about 6 weeks once the Methotrexate has kicked in.

I did discover something interesting though during this flare.  Over the last 9 months I have not suffered from the high cyclic temperatures.  I put this down to being on the Prednisone.  I did however notice that my normal temperature (which used be bang on 98.6 ) had reduced to about 98.  For this short period while I was off Prednisone I monitored my temperature and I had a typical daily Stills temperature cycle, but from 96 to 98, whereas previously with Stills my cycle had been from 98.6 to 101-102.  I also plotted my fatigue/concentration levels against my temperature and not surprisingly when my temperature was low I felt very fatigued and had difficulty concentrating.  Strangely I never felt cold, in fact when my temperature got near normal it felt as if I had a fever, (sweating and shivers).

 

This is what my temperature looked like:

 

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