AOSD Update

AOSD Update. 

In my last update I was fairly up beat, my pain had declined a lot and I was feeling pretty positive in myself.  I was getting lots of exercise, sleeping ok, and coping well with the fatigue.  However just after that update I got a chest infection, this is what happened:


  1. Very quickly, as soon as I noticed that I was starting with a cold, I felt an increase in muscle and joint pain

  2. I went to the doctors 2 days after the cold started and he said I had a chest infection, probably as a result of my steroid suppressed immune system.  I started on Antibiotics that day

  3. The antibiotics got to work quickly and my muscle and joint pain subsided in perfect step with my chest infection

  4. However my fatigue levels did not subside, in fact they increased

  5. After a week the chest infection was gone, but the muscle and joint pain started to come back

  6. After two weeks all of the chest/cold symptoms have gone but the fatigue is very bad and the joint and muscle pain still comes and goes through the day.  My concentration is appalling. 

  7. I …